{"id":30315,"date":"2021-02-26T18:28:00","date_gmt":"2021-02-26T18:28:00","guid":{"rendered":"http:\/\/patrocinados.estadao.com.br\/medialab\/agenciacomunicacao\/prnewswire\/prnewsinternacional\/pr-newswire-internacional-dia-mundial-das-doencas-raras\/"},"modified":"2021-02-26T18:28:00","modified_gmt":"2021-02-26T18:28:00","slug":"pr-newswire-internacional-dia-mundial-das-doencas-raras","status":"publish","type":"post","link":"https:\/\/bluestudio.estadao.com.br\/agencia-de-comunicacao\/prnewswire\/prnewsinternacional\/pr-newswire-internacional-dia-mundial-das-doencas-raras\/","title":{"rendered":"PR NEWSWIRE &#8211; INTERNACIONAL :: Dia Mundial das Doen\u00e7as Raras"},"content":{"rendered":"<div class=\"xn-newslines\">\n<h1 class=\"xn-hedline\">Dia Mundial das Doen\u00e7as Raras<\/h1>\n<h2 class=\"xn-hedline\">Hipertens\u00e3o Arterial Pulmonar atinge cerca de 5 mil brasileiros<\/h2>\n<p class=\"xn-distributor\">PR Newswire<\/p>\n<p class=\"xn-dateline\">S\u00c3O PAULO, 26 de fevereiro de 2021<\/p>\n<\/div>\n<div class=\"xn-content\">\nS\u00c3O PAULO, 26 de fevereiro de 2021 \/PRNewswire\/ &#8212; Falta de ar, cansa\u00e7o extremo e fadiga s\u00e3o sintomas da Hipertens\u00e3o Arterial Pulmonar (HAP), doen\u00e7a limitante e que compromete a pr\u00e1tica de atividades simples como subir e descer escadas. No Brasil, estima-se que a doen\u00e7a atinja 5 mil pessoas, principalmente jovens e mulheres a partir dos 30 anos\u00b9. <\/p>\n<p>A HAP \u00e9 caracterizada pela eleva\u00e7\u00e3o anormal da press\u00e3o nas art\u00e9rias entre o cora\u00e7\u00e3o e os pulm\u00f5es, podendo levar \u00e0 insufici\u00eancia card\u00edaca. A doen\u00e7a est\u00e1 relacionada a um desequil\u00edbrio de diferentes vias metab\u00f3licas e seu tratamento consiste em atuar nessas vias para alterar o curso da doen\u00e7a. &#8220;Precisamos alertar a popula\u00e7\u00e3o sobre os sintomas e causas dessa doen\u00e7a incapacitante, processo fundamental para direcionar o paciente para o tratamento adequado. A jornada do paciente at\u00e9 o diagn\u00f3stico e tratamento \u00e9 bastante longa, o que impacta substancialmente sua qualidade de vida, ainda mais se considerarmos que grande parte deles \u00e9 jovem&#8221;, diz o Dr. <span class=\"xn-person\">Caio Fernandes<\/span>, pneumologista da Universidade de S\u00e3o Paulo.<\/p>\n<p>A doen\u00e7a reduz progressivamente a capacidade de fazer atividades f\u00edsicas e, nos est\u00e1gios mais avan\u00e7ados, torna imposs\u00edvel afazeres simples e a press\u00e3o pode for\u00e7ar uma insufici\u00eancia card\u00edaca fatal. O intervalo m\u00e9dio desde o in\u00edcio dos sintomas at\u00e9 o diagn\u00f3stico \u00e9 de aproximadamente 2 anos<sup>ii<\/sup>. Normalmente, o diagn\u00f3stico da HAP \u00e9 feito por meio de exames f\u00edsicos e complementares, como o ecocardiograma e exame de ultrassom e o cateterismo card\u00edaco direito.<\/p>\n<p>A HAP n\u00e3o tem cura, mas os tratamentos podem melhorar os sintomas e a qualidade de vida do paciente, al\u00e9m de conter o avan\u00e7o da doen\u00e7a. As terapias tradicionais incluem abordagens convencionais, como a oxigenoterapia, anticoagulantes, diur\u00e9ticos e\/ou vasodilatadores<sup>iii<\/sup>. Os avan\u00e7os no tratamento t\u00eam se concentrado na terapia combinada. <\/p>\n<p><b>Campanha especial <\/b><\/p>\n<p><i>A Vida Merece um F\u00f4lego &#8211; <\/i>sob este mote, a Janssen lan\u00e7ou uma campanha nacional de conscientiza\u00e7\u00e3o, engajamento e dissemina\u00e7\u00e3o de informa\u00e7\u00f5es sobre a HAP para apoiar a jornada do paciente com a doen\u00e7a e conta com conte\u00fados e a\u00e7\u00f5es para facilitar o acesso \u00e0 informa\u00e7\u00e3o.<\/p>\n<p>O site da campanha, <a href=\"http:\/\/www.janssen.com\/brasil\/blog\/avidamereceumfolego\">www.janssen.com\/brasil\/blog\/avidamereceumfolego<\/a>, traz mais detalhes da doen\u00e7a e depoimentos de pacientes que convivem com a HAP. _____________________________________________________<\/p>\n<p><sup>i<\/sup>\u00a0DATASUS,\u00a0Clinical Protocol Therapeutic Guidelines for Pulmonary Arterial Hypertension, em\u00a0:<a target=\"_blank\" href=\"https:\/\/portalarquivos2.saude.gov.br\/images\/pdf\/2014\/abril\/03\/pcdt-hipertensao-arterial-pulmonar-2014.pdf\" rel=\"noopener\">https:\/\/portalarquivos2.saude.gov.br\/images\/pdf\/2014\/abril\/03\/pcdt-hipertensao-arterial-pulmonar-2014.pdf<\/a>\u00a0<br \/><sup>ii<\/sup>Sitbon O, et al. New Engl J Med 2015; 373:2522-33<br \/><sup>iii<\/sup>NORD (National Organization for Rare Disorders), em <a target=\"_blank\" href=\"https:\/\/rarediseases.org\/rare-diseases\/pulmonary-arterial-hypertension\" rel=\"noopener\">https:\/\/rarediseases.org\/rare-diseases\/pulmonary-arterial-hypertension<\/a>\u00a0<br \/><sup>iv<\/sup>Sitbon O, et al. New Engl J Med 2015; 373:2522-33<br \/><sup>v<\/sup>Gali\u00e8 et al. Eur Heart J 2016; 37:67-119; <br \/><sup>v<\/sup>Badesch et al. Chest 2004;126:35S-62S; <br \/><sup>v<\/sup>Badesch et al. Chest 2007;131:1917-28; <br \/><sup>v<\/sup>Taichman et al.Chest2014;146:449-75;<br \/><sup>v<\/sup>Gali\u00e8 et al.J Am Coll Cardiol2013;62:D60?72.<\/p>\n<p>\u00a0<\/p>\n<p>\u00a0<\/p>\n<p>FONTE  Janssen<\/p>\n<\/div>\n<p><img decoding=\"async\" alt=\"\" src=\"https:\/\/rt.prnewswire.com\/rt.gif?NewsItemId=PT93152&amp;Transmission_Id=202102261622PR_NEWS_LATAM____PT93152&amp;DateId=20210226\" \/><\/p>\n<p>PR NEWSWIRE<\/p>\n","protected":false},"excerpt":{"rendered":"Dia Mundial das Doen\u00e7as Raras Hipertens\u00e3o Arterial Pulmonar atinge cerca de 5 mil brasileiros PR Newswire S\u00c3O PAULO, 26 de fevereiro de 2021 S\u00c3O PAULO, 26 de fevereiro de 2021 \/PRNewswire\/ &#8212;","protected":false},"author":1,"featured_media":30316,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"_monsterinsights_skip_tracking":false,"footnotes":""},"categories":[31],"tags":[],"class_list":["post-30315","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-prnewsinternacional"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>PR NEWSWIRE - INTERNACIONAL :: Dia Mundial das Doen\u00e7as Raras - Ag\u00eancia de Comunica\u00e7\u00e3o<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/bluestudio.estadao.com.br\/agencia-de-comunicacao\/prnewswire\/prnewsinternacional\/pr-newswire-internacional-dia-mundial-das-doencas-raras\/\" \/>\n<meta property=\"og:locale\" content=\"pt_BR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"PR NEWSWIRE - INTERNACIONAL :: Dia Mundial das Doen\u00e7as Raras - Ag\u00eancia de Comunica\u00e7\u00e3o\" \/>\n<meta property=\"og:description\" content=\"Dia Mundial das Doen\u00e7as Raras Hipertens\u00e3o Arterial Pulmonar atinge cerca de 5 mil brasileiros PR Newswire S\u00c3O PAULO, 26 de fevereiro de 2021 S\u00c3O PAULO, 26 de fevereiro de 2021 \/PRNewswire\/ &#8212;\" \/>\n<meta property=\"og:url\" content=\"https:\/\/bluestudio.estadao.com.br\/agencia-de-comunicacao\/prnewswire\/prnewsinternacional\/pr-newswire-internacional-dia-mundial-das-doencas-raras\/\" \/>\n<meta property=\"og:site_name\" content=\"Ag\u00eancia de Comunica\u00e7\u00e3o\" \/>\n<meta property=\"article:published_time\" content=\"2021-02-26T18:28:00+00:00\" \/>\n<meta name=\"author\" content=\"patric_oliveira\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Escrito por\" \/>\n\t<meta name=\"twitter:data1\" content=\"patric_oliveira\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. tempo de leitura\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutos\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/bluestudio.estadao.com.br\\\/agencia-de-comunicacao\\\/prnewswire\\\/prnewsinternacional\\\/pr-newswire-internacional-dia-mundial-das-doencas-raras\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/bluestudio.estadao.com.br\\\/agencia-de-comunicacao\\\/prnewswire\\\/prnewsinternacional\\\/pr-newswire-internacional-dia-mundial-das-doencas-raras\\\/\"},\"author\":{\"name\":\"patric_oliveira\",\"@id\":\"https:\\\/\\\/bluestudio.estadao.com.br\\\/agencia-de-comunicacao\\\/#\\\/schema\\\/person\\\/3565da46092a837cdffa42904dfc6d37\"},\"headline\":\"PR NEWSWIRE &#8211; 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